Just a quick note tonight to fill everyone in. I am extremely tired and need to get to bed. So I was really looking forward to today's appointment. I thought it would answer a lot of questions, but I am just totally confused right now. I can tell you, I am stage 2a. The "a" means I have no symptoms. And then he added an "unfavorable" to the end. This means the cancer has spread and is in more than 3 areas. So my neck/collar bone on both sides, my chest (around my windpipe) and under my right arm. There is an 80% cure rate still and it won't change the treatment plan at all.
That is where my confusion is. I don't know when I will have Chemo. There is question as to weather it will be every other week or once a month.
I go in on Thursday to have a port put in my chest. This will remain there for the entire time I am battling this or 2 years. I will have a tube coming out of my chest about 6 inches. On Friday I go in for Chemo school. My sister Karin is going to go with me and drive me around all day :) since I can't drive for 24 hours after my surgery. Bring a book! I also have a couple other appts. An EKG and something else I think. I don't know, I just go where they tell me.
Sorry no "deep thoughts" tonight. I am having yet another rough day. I am just so tired of not knowing.
I will try and post again on Friday, when I might know something.
Thank you once again to EVERYONE!
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This is my first attempt at blogging. Wish me luck!
HHHHMMMMM Where to begin... Well back in June (June 4th), my 31st birthday to be exact. My husband Frank and I went out to Northern Quest casino. I was sitting there playing the slots and just happened to notice a lump on my neck. Didn't think much of it at the time. When we got home I got on the internet and did some research. From what I found I figured I maybe had a virus or recently gotten over something which made my lymph nodes swell. I went on with life still not thinking much of it and trying to leave it alone to see if it would go away. By the end of August it still had not gone away so I made an appointment at the CHAS clinic near my house. The doctor did some blood work and sent me for a chest x-ray to rule out lung cancer. I was so very relieved to get the results that my blood work came back fine and I did NOT have lung cancer. Seeing as I have never smoked in my life, this is good.
I went on with my life working, playing and taking care of my kids not having any symptoms just assumed it was my Mono acting up from years ago. I had been extremely "burnt out" for a few weeks but figured it was just from the holidays and getting our house ready to sell.
In January (January 7th) I made an appointment with a different doctor's office to see about getting some relief for my back pain that has come and gone for years. This time it moved down to my hip and backside. She gave me some meds and a referal to a physical therapist and said I had Sciatica. I just happened to ask her about my swollen lymph node that had swelled a little bit more over the past few days. She did some more bloodwork and sent me for a CT scan (January 8th).
I figured that I had some Thyroid issue and she would be able to get me back in shape by getting me on some meds. On January 12th I got the results of the bloodwork and it came back that I had a Vitamin D deficiency. I got some Vitamin D and she said she wanted to see me again in 12 weeks. The CT scan showed I had swollen lymph nodes.
So my next step was being sent to a surgeon on January 13th to see about doing a needle biopsy. Rather than do a needle biopsy, the surgeon told me I had to have the lymph node removed.
So on January 21st my wonderful husband took me to the hospital to have my first major surgery. It really was only minor, but to me it was MAJOR! I recovered nicely from the surgery with very little pain. The surgeon told me to call him on Tuesday (January 26th) to get the results of the biopsy. At this point I figured I had an infection and they would get me on some antibiotics and in a few weeks I would be good to go.
January 26th my life changed horribly... I played phone tag with the surgeon ALL DAY! Finally at about 4:30 he finally got in touch with me and told my that I have Hodgkins Lymphoma. Yep, I have cancer. I was home alone with my kids, Frank was at work and my mom is hundreds of miles away in Montana.
I went on with my life working, playing and taking care of my kids not having any symptoms just assumed it was my Mono acting up from years ago. I had been extremely "burnt out" for a few weeks but figured it was just from the holidays and getting our house ready to sell.
In January (January 7th) I made an appointment with a different doctor's office to see about getting some relief for my back pain that has come and gone for years. This time it moved down to my hip and backside. She gave me some meds and a referal to a physical therapist and said I had Sciatica. I just happened to ask her about my swollen lymph node that had swelled a little bit more over the past few days. She did some more bloodwork and sent me for a CT scan (January 8th).
I figured that I had some Thyroid issue and she would be able to get me back in shape by getting me on some meds. On January 12th I got the results of the bloodwork and it came back that I had a Vitamin D deficiency. I got some Vitamin D and she said she wanted to see me again in 12 weeks. The CT scan showed I had swollen lymph nodes.
So my next step was being sent to a surgeon on January 13th to see about doing a needle biopsy. Rather than do a needle biopsy, the surgeon told me I had to have the lymph node removed.
So on January 21st my wonderful husband took me to the hospital to have my first major surgery. It really was only minor, but to me it was MAJOR! I recovered nicely from the surgery with very little pain. The surgeon told me to call him on Tuesday (January 26th) to get the results of the biopsy. At this point I figured I had an infection and they would get me on some antibiotics and in a few weeks I would be good to go.
January 26th my life changed horribly... I played phone tag with the surgeon ALL DAY! Finally at about 4:30 he finally got in touch with me and told my that I have Hodgkins Lymphoma. Yep, I have cancer. I was home alone with my kids, Frank was at work and my mom is hundreds of miles away in Montana.
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Sorry you didn't get any answers, or the ones you were looking for.. keep your head up.. We will be think about you.. :)
ReplyDeleteI wish I could be there for you Kelli. Thank you, Karin for always being the strong one!! (Besides you, Kelli)
ReplyDelete