Sunday, March 14, 2010

Hello again to everyone. Thank you for keeping up with me. I love to go back and read all your comments. Some make me laugh, some make me smile, and some make me want to cry. My emotions are actually in check lately. Not too bad. Hooray for Frank! So I am still doing really well since my last Chemo and am anxiously (?????) awaiting this coming Wednesday to get #3 out of the way! Here is a not too great picture of me with my new Tinkerbell hat. I think Zander took this one. It's for the people that don't get to see me, which is probably the majority of you reading this. My hair is really coming out. I have been thinking about cutting it one more time, but don't know if it's worth it. I think in the next couple weeks I will be shaving it.
After doing all of my countdowns I thought "how sad is that!" and I told Frank I NEED something to look forward too. Just the end of Chemo isn't cutting it for me anymore. Soooooo... We are in the process of planning a trip to... VEGAS! We aren't going until October, but I am looking and looking and looking and pricing and pricing. A couple of my sisters and their families are coming with us and maybe a friend from work and her husband. We are going to go down for 4 days with everyone else and then we are going to stay a few extra days with my good friend Kim who lives there. And as much as Frank is trying to talk me out of it... OUR KIDS ARE GOING WITH US! Just not ready to part with them any time soon. Hopefully the medical bills won't get in the way of this trip. I am trying to get it going soon so we are "locked" in.

We also got tickets to opening day for the Mariners! This has been a big concern to me because I just don't know if I will feel up to going. Hopefully I will be okay. If not, Irelynn and I can hang out at the hotel and Frank and Zander can go without me. I just couldn't watch it go by without at least trying. We have gone every year since we got married and Zander and Irelynn have both been to every one since they were born. Well, Irelynn went last year and this will be her 2nd. It will be Zander's...4th.

So Irelynn has an appt tomorrow to get a new G-Tube. She won't be able to pull this one out like she does now. Which will be nice. I am going to push to see if they will re-do her fundoplication. With the Fundo, they take the upper part of the stomach and wrap it around the esophagus. She can no longer puke when she has this done. She had it done last May and it only lasted 4 months. I am hoping this time it will last longer. I worry about the acid coming up and how uncomfortable that is for her. I know over the last few weeks I have developed horrible heartburn and it sucks! I can only imaging how she feels. She hasn't gained any weight since her 12 month check up. Actually she did gain, but then she lost it again. The pediatrician isn't too concerned about the weight loss, because Irelynn is so mobile now and burning calories. I think though that her dietitian and her speech therapist are on board with us wanting to re-do the fundo.

Zander is doing well and had recovered from his ear infection and possible strep. He is happy to tell us "my ears don't hurt anymore!". He is wanting to get outside so much now. Hopefully over the next few weeks it will get even nicer than it already is.

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